Tuesday, September 30, 2025

Isla's recovery update - day after surgery

Isla had a fairly peaceful night last night (always tough to peacefully sleep with so many beeping machines, vitals being taken often, meds, and people coming in the room so often. So, peaceful sleep for her is a huge blessing!) She still needed constant oxygen support all night and through the day today. 

Today was quite rough for her. Her pain levels prior to surgery were in a rough place and adding in a surgery now, it was a painful day. 

She tried going for a few walks, but would have oxygen desaturation, so had to go back to resting often. She hasn't had much of an appetite and was quite sleepy. She kept asking "what's next" and if we had a "timer set" so we could be done at the hospital and go home. Precious girl wants to keep crossing things off a to-do list and just wants the comfort of home. She has been so brave.

Isla had two sets of x-rays done today. We tried to play anything we could while resting. Isla typically let's nothing stop her from playing, so we knew she really wasn't feeling well when all she wanted to do was lay and cuddle Mama. 







Tonight we have tried turning off the oxygen again and she is staying fairly steady in a safe zone! Woohoo!!! Thank you, Lord! 

If she can stay in that place through the night, her team feels it is safe to discharge her from the hospital in the morning. 

We want to get our girl home 🩷

It is really incredible and a miracle that this surgery was able to happen. While there is still so much that is hard and heavy on our hearts, we are just so grateful to God for this miracle of another successful surgery. Not taking that for granted. 

Lot on our minds and a lot to pray about moving forward. 

Thank you for praying for Isla and our family. 

Please pray for wisdom on when to travel... for smooth travel home - for it to not be painful for Isla and that she can rest well and feel peace through the flights. Oh! And prayer for kind airport and flight personnel. 

Please pray we all stay healthy right now 🙏 and for Isla to have no complications through her recovery.


Monday, September 29, 2025

VEPTR surgery day

Today was surgery day... 
We all stepped into today with fears and a lot of faith... praising God for Isla getting amazing peaceful sleep last night. 
Lots of time awake and praying for this mom last night 🤍 just being honest...

I want to start this update by saying God gave us miracles today. We give him the glory! We are so relieved, filled with joy, and praising the Lord that Isla's body handled intubation and a successful VEPTR expansion of both her rods. To say we felt such relief when Dr. Borek (ENT) and Dr. Anari (Orthopedic surgeon) told us the good news is an understatement. We felt literal weight leave our shoulders. Dr. Anari said he felt the same... Isla's surgery has been constantly on his mind, too, these last few months since her last canceled surgery. 

Within our relief, there was still concern... her whole team had concern about her extubation. Unfortunately, this did not go well at first. They extubated Isla and her airway immediately collapsed and breathing dropped. They were unable to get her breathing using other options but PRAISE GOD, Dr. Borek was able to get Isla intubated again. 
They kept her intubated for a while, until feeling safer to try extubation again. Thankfully, it worked, but it was scary. So unknown which way it would go. We mentioned this before, but having a tracheostomy will never be an option for Isla. So it makes this situation even scarier. 
Isla needed oxygen support, but was able to go to the PICU for recovery. She has been on oxygen all day/night, but she is needing less than earlier tonight...so good! 
She is SO STRONG! We are so very proud of her. 

Our prayer is that Isla will not need oxygen tomorrow and possibly be able to discharge to the hotel. Being in the hospital is very hard on her. 
Sweet girl has had a really emotional day... painful day. 


So, once again, our hearts are filled with joy.. celebrating miracles God has done, and also leaning into his strength for comfort as we process what is ahead. 

"When my world is shaking, 
heaven stands
When my heart is breaking
I never leave your hands" 
Your Hands - JJ Heller 

Trusting the Lord...He is so good