Monday, August 3, 2020

Today

Yesterday came...I woke up at the hospital (I had to be admitted into the hospital on July 31 from a severe autoimmune flare with my ulcerative colitis). I was feeling quite awful and emotionally drained. My doctor (so thankful for my team of doctors...big blessing!) had a talk with me about recovery and they were advocating for me to have a lot of say in my treatments, hospital stay, and recovery. 

The thing with severe ulcerative colitis (and many other autoimmune conditions for that matter) is that there is no definite timeline of recovery from a bad flare. These flares will happen and every body handles treatments differently. The doctors said if I were to stay in the hospital to try to recover, I could be there a month or two or...?? And, even at that point, the disease is not gone. My bloodwork was looking up, I had handled two days of new treatments added to my regimen already, so they told me they trust me with doing the treatments at home, if I would like to try. They spoke of how emotional and difficult the journey is and know that home, with my family, is a better place to try to recover. So, with the doctors support, I chose to go home. 💗

Yesterday was sweet and so rough. Walking through the door to my fam was a burst of joy to my heart! 
But, my body is in rough shape. I am not recovered from this - it will take time. I felt so sick (still do). It can feel so defeating for sure. I was still in so much pain and just felt physically miserable. 
I was able to get some good sleep last night, which is such a blessing!
I head in this afternoon for an endoscopy. Please pray I handle the anesthesia and scope ok! My body is really weak right now. 

Thank you for praying for me and our family! We feel overwhelmed, stressed, and sad, BUT we have felt peace and joy too. 
We desire to praise the Lord at all times, no matter our circumstances. That does not mean we always feel happy. But, it does mean that we have HOPE and JOY because of who God is and trusting his sovereignty through everything. 
These lyrics, from "Highlands (song of ascent) by Hillsong, keep popping up in my head.
So, I will praise you on the mountain, And, I will praise you when the mountain's in my way, You're the summit where my feet are. So, I will praise you in the valleys all the same. No less God within the shadows. No less faithful when the night leads me astray. You're the heaven when my heart is. In the highlands and the heartache all the same. 

Thank you for all the prayers and encouragement! We need it! Thank you for messages - so sorry if we haven't gotten back to you yet! 
We ask that you keep praying for us! My other health issues that have been going on are still evident and being watched by my team. We are still trying to figure it all out. I am waiting to hear back from a doctor/team of specialists in Utah. We hope to hear from them soon and have the chance to meet with them. 

Many are asking how to help...we are thinking through this again and will share more as we figure it out. We appreciate all the love so very much! 



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