We all stepped into today with fears and a lot of faith... praising God for Isla getting amazing peaceful sleep last night.
Lots of time awake and praying for this mom last night 🤍 just being honest...
I want to start this update by saying God gave us miracles today. We give him the glory! We are so relieved, filled with joy, and praising the Lord that Isla's body handled intubation and a successful VEPTR expansion of both her rods. To say we felt such relief when Dr. Borek (ENT) and Dr. Anari (Orthopedic surgeon) told us the good news is an understatement. We felt literal weight leave our shoulders. Dr. Anari said he felt the same... Isla's surgery has been constantly on his mind, too, these last few months since her last canceled surgery.
Within our relief, there was still concern... her whole team had concern about her extubation. Unfortunately, this did not go well at first. They extubated Isla and her airway immediately collapsed and breathing dropped. They were unable to get her breathing using other options but PRAISE GOD, Dr. Borek was able to get Isla intubated again.
They kept her intubated for a while, until feeling safer to try extubation again. Thankfully, it worked, but it was scary. So unknown which way it would go. We mentioned this before, but having a tracheostomy will never be an option for Isla. So it makes this situation even scarier.
Isla needed oxygen support, but was able to go to the PICU for recovery. She has been on oxygen all day/night, but she is needing less than earlier tonight...so good!
She is SO STRONG! We are so very proud of her.
Our prayer is that Isla will not need oxygen tomorrow and possibly be able to discharge to the hotel. Being in the hospital is very hard on her.
Sweet girl has had a really emotional day... painful day.
So, once again, our hearts are filled with joy.. celebrating miracles God has done, and also leaning into his strength for comfort as we process what is ahead.
"When my world is shaking,
heaven stands
When my heart is breaking
I never leave your hands"
Your Hands - JJ Heller
Trusting the Lord...He is so good
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